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New Solutions - vol. 26 n° 3 -

"The Social Science-Environmental Health Collaborations Conference in May 2016 was a unique gathering of scholars from the social sciences and environmental health sciences, government agency professionals, community organizers and activists, and students. Conference participants described the research and practice of environmental public health as done through a transdisciplinary lens and with a community-based participatory research/community-engaged research model. NIEHS' role in supporting such work has helped create a growing number of social and environmental health scientists who cross boundaries as they work with each other and with community-based organizations."
"The Social Science-Environmental Health Collaborations Conference in May 2016 was a unique gathering of scholars from the social sciences and environmental health sciences, government agency professionals, community organizers and activists, and students. Conference participants described the research and practice of environmental public health as done through a transdisciplinary lens and with a community-based participatory research/c...

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New Solutions - vol. 24 n° 4 -

"In the past decade, exposure to flame retardant chemicals has become a pressing health concern and widely discussed topic of public safety for firefighters in the United States. Working through local, state, and national unions and independent health and advocacy organizations, firefighters have made important contributions to efforts to restrict the use of certain flame retardants. Firefighters are key members in advocacy coalitions dedicated to developing new environmental health regulations and reforming flammability standards to reflect the best available fire science. Their involvement has been motivated by substantiated health concerns and critiques of deceptive lobbying practices by the chemical industry. Drawing on observations and interviews with firefighters, fire safety experts, and other involved stakeholders, this article describes why firefighters are increasingly concerned about their exposure to flame retardant chemicals in consumer products, and analyzes their involvement in state and national environmental health coalitions. "
"In the past decade, exposure to flame retardant chemicals has become a pressing health concern and widely discussed topic of public safety for firefighters in the United States. Working through local, state, and national unions and independent health and advocacy organizations, firefighters have made important contributions to efforts to restrict the use of certain flame retardants. Firefighters are key members in advocacy coalitions dedicated ...

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Social Movement Studies - vol. 11 n° 2 -

"Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce the concept of reflexive research ethics: ethical guidelines and decision-making principles that depend on continual reflexivity concerning the relationships between researchers and participants. Seeing ethics in this way can help scientists conduct research that simultaneously achieves a high level of professional conduct and protects the rights, well-being, and autonomy of both researchers and the multiple publics affected by research. We highlight our research with community-based organizations in Massachusetts, California, and Alaska, and discuss the potential impacts of the community or social movement on the research process and the potential impacts of research on community or social movement goals. We conclude by discussing ways in which the ethical concerns that surface in community-engaged research have led to advances in ethical research practices. This type of work raises ethical questions whose answers are broadly relevant for social movement, environmental, and public health scholars."
"Community-engaged research on environmental problems has reshaped researcher-participant relationships, academic-community interaction, and the role of community partners in human subjects protection and ethical oversight. We draw on our own and others' research collaborations with environmental health and justice social movement organizations to discuss the ethical concerns that emerge in community-engaged research. In this paper we introduce ...

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Sociology of Health and Illness - vol. 26 n° 6 -

"Health social movements (HSMs) are an important political force concerning health access and quality of care, as well as for broader social change. We define HSMs as collective challenges to medical policy, public health policy and politics, belief systems, research and practice which include an array of formal and informal organisations, supporters, networks of cooperation and media. HSMs make many challenges to political power, professional authority and personal and collective identity. These movements address (a) access to, or provision of, health-care services; (b) disease, illness experience, disability and contested illness; and (c) health inequality and inequity based on race, ethnicity, gender, class and/or sexuality.
This introductory essay has three goals. First, we aim to explain why an entire volume on health social movements is warranted, by specifying the important analytical questions to be answered and by situating the volume in the midst of a growing interest in the topic among scholars from various sociological fields and even other disciplines. Second, we seek to offer an explanation for the phenomenon of health social movements generally, and more specifically what appears to be a recent growth in their presence and power in contemporary societies. We do this by noting the growing tendency across all movements to challenge authority structures, and by emphasising the ways in which HSMs challenge the authority of medicine, science, governments and corporations. Third, we further develop the concept of health social movements, and offer some conceptual tools that may be of use in reading the contributions to the volume, which we introduce in a manner that offers insight into the ways in which they advance our understanding of HSMs."
"Health social movements (HSMs) are an important political force concerning health access and quality of care, as well as for broader social change. We define HSMs as collective challenges to medical policy, public health policy and politics, belief systems, research and practice which include an array of formal and informal organisations, supporters, networks of cooperation and media. HSMs make many challenges to political power, professional ...

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Sociology of Health and Illness - vol. 13

"Given the growing concern with breast cancer as a largely unexplained and common illness of our time, we would expect considerable print media coverage. An accurate portrayal of breast cancer would also include a good amount of attention to the potential environmental factors since many women with breast cancer and activists are pointing to such potential causes. Our examination of daily newspapers, newsweeklies, science periodicals, and women's magazines showed that there was little coverage of possible environmental causation. There was also scant attention paid to corporate and governmental responsibility. Articles often focused on individual responsibility for diet, age at birth of first child, and other personal behaviours. Articles also emphasised genetic causation, even though this explained only a small fraction of breast cancer incidence. These factors combine to place personal responsibility on women for preventing the disease. Despite gains in understanding possible environmental causation and much scientific dialogue about it, especially in light of the endocrine disrupter hypothesis, and despite growing social activism, the print media have not paid much attention to environmental causation of breast cancer. Because the media have significant influence over public understanding and social action, this lack of attention may hold back scientific and activist pursuit of environmental causes of breast cancer"
"Given the growing concern with breast cancer as a largely unexplained and common illness of our time, we would expect considerable print media coverage. An accurate portrayal of breast cancer would also include a good amount of attention to the potential environmental factors since many women with breast cancer and activists are pointing to such potential causes. Our examination of daily newspapers, newsweeklies, science periodicals, and ...

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New Solutions - vol. 29 n° 2 -

"In the absence of comprehensive environmental regulation, under what conditions can social movement pressure on the private sector generate substantive change? We explore this question in relation to per- and poly-fluoroalkyl substances (PFAS), a class of persistent, bioaccumulative, and toxic chemicals that are widely used in consumer products and industrial processes yet remain largely understudied and weakly regulated. This paper focuses on the strengths and limitations of one high-profile shame campaign by Greenpeace that has called for clothing and outdoor brands to eliminate PFAS from their products. We find that while the campaign appears to have spurred widespread awareness of PFAS in the apparel industry, corporate action remains fragmented and leaves broader environmental and social justice concerns unaddressed. We highlight the urgent need for comprehensive federal regulation for toxic chemicals, increased funding for green chemistry, and collaborative governance of global production networks."
"In the absence of comprehensive environmental regulation, under what conditions can social movement pressure on the private sector generate substantive change? We explore this question in relation to per- and poly-fluoroalkyl substances (PFAS), a class of persistent, bioaccumulative, and toxic chemicals that are widely used in consumer products and industrial processes yet remain largely understudied and weakly regulated. This paper focuses on ...

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